 We are advocates of awareness and research in an effort to realise improvement in diagnosis and treatment of various disorders. We have been individually active for some years and recently decided to join forces and create a European platform. Our aim is to provide information and support, to connect people from all over the world, improve communication and offer tools to improve the quality of life for patients with an Invisible illness. The website is growing daily and so is our member community. Currently we are in the process of officially setting up the foundation. All funds we hope to collect will be sent towards research and support, so we can help make a difference and improve circumstances for patients everywhere. We have a business background in common and an interest in medicine. We edit each other's contributions and monitor current medical research. We are not medically qualified so please discuss all information from this site with your medical professional before making any changes that may affect your health. Within our own powers we are trying to make a contribution to help others. We hope to give you a fresh perspective on symptoms, treatment and support and help you to take charge of your health and progress. Prickles, Carlos, Carla |
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 Welcome to Diagnose Support ! You can read the articles I have written in Prickles Corner, which you will find on the menu on the left. I have fibromyalgia, hypermobile joints, Chronic Myofascial Pain and some heart and respiratory problems. I was not diagnosed until more than 7 years after my pain began. All that time I had no idea what was wrong with me. In fact, I had never even heard of fibromyalgia until I was diagnosed! Click here to view a 10 minute documentary about my life with fibromyalgia. I am trying to increase awareness of invisible illnesses, in the hope that other patients will be diagnosed earlier on. Here at Diagnose Support we understand how distressing it can be when you do not know what is wrong with you. We are here to help you find answers! Communication can help us to fight ignorance and find new treatments. On the awareness pages in Prickles Corner you will find information to educate yourself, your friends and your family about your condition. I know it can be difficult to explain what it is like living with a chronic illness, so I have tried to capture all the relevant information here for you. We hope you will find answers, support and friends via Diagnose Support and that you will help us to spread the word about invisible illnesses! I am 21 and a German and Management Science Student Co-founder of Diagnose Support |
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 Ever since I was four years old, my health was worrisome. There was always something wrong and I was under paediatric care on a monthly basis until I was 12 years old. Between then and the time I was seventeen, I could function fairly normally.
After that my health started to decline again. At 22 the first long term symptoms occurred. Yet I pushed myself thinking that fatigue was a common problem, as were nerve damage, joint pain and recurrent infections. One day in 2001 I could not get out of bed in the morning. I knew something was "broken", but not understanding what happened, I was desperate in finding medical help and was appalled by physicians' bedside manner and their lack of interest in making me better. In 2005 I reclaimed 80% of my energy. Now, five years after I fell ill, I am still trying to get physicians to make a differential diagnosis, to demand care and treatment. A cause is not yet established, although we are getting closer ! I have come to the understanding that information and education is the KEY to improvement, which I'm sharing with you here. At 37 I'm a retired business consultant Co-founder of Diagnose Support |
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 Three years before I was diagnosed with CFS, I suffered from RSI (Repetitive Strain Injury) complaints, at that time I was told to have RSI, Chronic Neuropatic pain, Fibromyalgia, Stress, etc...
In September 2005 I attracted that infectious mononucleosis (Epstein Barr Virus), which is still active. Fortunately I do not suffer from pain any longer at this stage. Rest during the EBV attack made the pain gradually go away. Since February 2006 I have been diagnosed by 4 different specialists to suffer from CFS. Currently I am receiving medical treatment from Prof. Dr. Kenny DeMeirleir in Brussels and have local care from Dr. Garcia Quintana in Barcelona. Only now my clinical symptoms and infections are being investigated and treated. I have been diagnosed with EBV, Lactose intolerance, elevated Rnase-L and Elastase levels. There are several other abnormalities like high Levels of Nitic Oxide, high Lytic Activity and classic Low number of Natural Killer Cells. Research is of the essence to win the battle with this illness. Via Diagnose Support I am participating in building knowledge amongst fellow patients and treating physicians regarding research and treatment options. I am 37 yr. and a finance specialist Editor at Diagnose Support |
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 If you want to help spread information and help increase awareness about debilitating, invisible illnesses, please contact us. We are looking for more contributors that can help us build information for patients and care givers in Europe.
As an editor you can submit articles, interesting weblinks and support information from your own country, regarding a topic you are knowledgeable of. Connecting people and making sure accurate information is distributed is a serious task. We will highly appreciate it if you are willing to make contributions to the content of the website. Also contact us if you want to assist with our local events. This may vary from assisting during events we organise in your country to collecting information regarding potential sponsors, advocates etc. We will welcome you in our team, you will be having access to our organisation forum and be a part of Team Diagnose Support. If you wish we will publish your profile in the "About us" section, it is also possible to work with us anonymously. Please join us in our battle to increase awareness and spread information ! Register & then sign up via the "Contact us" link in the menu |
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- Barb (fellow patient on the Marshall Protocol)
- Jaimie M.Warren Phd (Health Coach)
- Jelly Belly (hostess of the website Cure 2003)
- Marla Silverman (founder of P.A.N.D.O.R.A)
- Rich Carson (founder of ProHealth)
- Stormy (for the shake, how the body works)
- Sujay (treating patients under the Marshall Protocol)
- Susanne (partner in research efforts)
(These people are not part of the Diagnose Support Team nor do we intend to use their names in vain. Listed in alphabetical order, may there be many more names on this list.... ) They are heroes in the CFS/ME/FM community who are actively participating in treatments, helping other patients beyond the call of duty and sharing their experiences so other people can learn from them. They have lead the way for many to improve, break open communication, record research and discuss treatments. It is their efforts that have inspired us to set up Diagnose Support. |
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Many thanks to those who have voluntarily given us their time, knowledge and linguistic skills... Nick Easter of Elfling Productions for the production of "Living with Fibromyalgia" and the shorter version that won the P.A.N.D.O.R.A. video contest Anna Leon for translating our fibromyalgia booklets and PowerPoint presentation into Greek Kolina Lind for creating the Living with Fibromyalgia video logo Pam Gobiel for designing one of the Diagnose Support banners Carol Kirkpatrick for her help with the C.R.P.S. awareness materials Mark Nicholls for translating our fibromyalgia booklets into Spanish Alec Bentley for translating our C.R.P.S. PowerPoint presentation into Spanish Carola Dalmau Almazan for translating our P.O.T.S. booklet into Spanish
...and others who wished to remain anonymous |
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Diagnose Support info